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AIDS Public Information Data
in the United States
for the years 1981 - 2002

AIDS Public Information Data Summary

Summary:   

This data set contains counts of AIDS (Acquired Immune Deficiency Syndrome) cases reported by state and local health departments, by demographics; location (region and selected metropolitan areas); case-definition; month/year and quarter-year of diagnosis, report, and death (if applicable); and HIV exposure group (risk factors for AIDS). The data are updated annually.

Population:   The United States, January 1981 through December 2002.

Source:    US Department of Health and Human Services (US DHHS),
Public Health Service (PHS),
Centers for Disease Control and Prevention (CDC),
National Center for HIV, STD and TB Prevention (NCHSTP),
Division of HIV/AIDS Prevention (DHP),
AIDS Public Information Data Set (APIDS),
US Surveillance Data for 1981-2002.

The case reports are collected by the HIV/AIDS Reporting System. Refer to Data Source Information.

In WONDER:    You can produce tables, charts, and data extracts. Request counts of AIDS cases for the years 1981-2002. You can limit and index your data by any and all of these variables:
  1. Date Reported - January 1981 - December 2002;
  2. Date Diagnosed - January 1981 - December 2002;
  3. Location - national, regional or metropolitan;
  4. Age at Diagnosis - age groups (age groups from less than 1 year to 65 and older);
  5. Country of Birth - born in US, possessions or territories, or foreign born;
  6. Race or Ethnicity - American Indian / Alaskan Native, Asian / Pacific Islander, Black, Hispanic, White, Unknown;
  7. Sex and Sexual Orientation - female (any orientation), male (bisexual), male (heterosexual or pediatric), male (homosexual) or unknown classification);
  8. Multiple Modes of Exposure - pediatric (not assessed), single mode of transmission is indicated, patient has additional risks, patient's exposure is not reported or identified;
  9. HIV Exposure Category - hemophilia/coagulation disorder, heterosexual contact, IV drug use (females and heteosexual males), male homo/bisexual and IV drug use, male homo/bisexual contact, mother with HIV or HIV risk, pediatric hemophilia, pediatric receipt of blood, pediatric risk not reported or indentified, receipt of blood, blood components or tissue, risk not reported or identified;
  10. Heterosexual Partner is HIV Positive? - no, yes, missing or invalid;
  11. Heterosexual Partner is Bisexual Male? - no, yes, missing or invalid;
  12. Heterosexual Partner is an IV drug user? - no, yes, missing or invalid;
  13. Heterosexual Partner has other risks? - no, yes, missing or invalid;
  14. Case definition - pre-1985 surveillance definition, 1985 surveillance definition, 1987 definition and diagnosed definitively, 1987 definition and diagnosed presumptively, 1993 definition and diagnosed definitively, 1993 definition and diagnosed presumptively, 1993 definition and diagnosed immunologically;
  15. Vital Status - alive (not reported dead before 2001), dead (reported dead prior to 2001).

Please refer to the following topics:


AIDS Data Request

Output:    You can produce tables, charts, and data extracts.

Variables:   
  1. Date Reported - January 1981 - December 2002;
  2. Date Diagnosed - January 1981 - December 2002;
  3. Location - national, regional or metropolitan;
  4. Age at Diagnosis - age groups (age groups from less than 1 year to 65 and older);
  5. Country of Birth - born in US, possessions or territories, or foreign born;
  6. Race or Ethnicity - American Indian / Alaskan Native, Asian / Pacific Islander, Black, Hispanic, White, Unknown;
  7. Sex and Sexual Orientation - female (any orientation), male (bisexual), male (heterosexual or pediatric), male (homosexual) or unknown classification);
  8. Multiple Modes of Exposure - pediatric (not assessed), single mode of transmission is indicated, patient has additional risks, patient's exposure is not reported or identified;
  9. HIV Exposure Category - hemophilia/coagulation disorder, heterosexual contact, IV drug use (females and heteosexual males), male homo/bisexual and IV drug use, male homo/bisexual contact, mother with HIV or HIV risk, pediatric hemophilia, pediatric receipt of blood, pediatric risk not reported or indentified, receipt of blood, blood components or tissue, risk not reported or identified;
  10. Heterosexual Partner is HIV Positive? - no, yes, missing or invalid;
  11. Heterosexual Partner is Bisexual Male? - no, yes, missing or invalid;
  12. Heterosexual Partner is an IV drug user? - no, yes, missing or invalid;
  13. Heterosexual Partner has other risks? - no, yes, missing or invalid;
  14. Case definition - pre-1985 surveillance definition, 1985 surveillance definition, 1987 definition and diagnosed definitively, 1987 definition and diagnosed presumptively, 1993 definition and diagnosed definitively, 1993 definition and diagnosed presumptively, 1993 definition and diagnosed immunologically;
  15. Vital Status - alive (not reported dead before 2001), dead (reported dead prior to 2001).
How?    The Request screen has sections to guide you through the making a data request as step-by-step process. However, to get your first taste of how the system works, you might want to simply press any Send button, and execute the default data request. The data results for your query appear on the Table screen. After you get your data results, try the Chart and Map screens. Or export your data to a file (tab-delimited line listing) for download to your computer.

For more information, see the following:

Quick Start Guide;
Step 1, Organize table layout;
Step 2, Select location;
Step 3, Select report dates;
Step 4, Select diagnosis dates;
Step 5, Select demographics;
Step 6, Select risk factors;
Step 7, Select disease criteria;
Step 8, Other Options.

'By-Variables'    Select variables that serve as keys (indexes) for organizing your data. See How do I organize my data? for more information.
Help:    Click on any button labled "Help", located to the right hand side of the screen at the top of each section. Each Control's label, such as the "Location" label next to the Location entry box, is linked to the on-line help for that item.
Send:    Sends your data request to be processed on the CDC WONDER databases. The Send buttons are located on the bottom of the Request page, and also in the upper right corner of each section, for easy access.



Step 1. Organize table layout:
Group Results By:    Select up to 5 variables that serve as keys for grouping your data. For example, you can group (summarize, stratify, index) your data by Year, State, Sex and Age.

How?    See How do I organize my data? for more information.

Hints:   

  • You cannot make charts when your data has more than two By-Variables.

Title:    Enter any desired description as a title for your results.


Step 2. Select location:

Limit the population to a specific place here. Alternately, you can leave the settings at the default values (the United States) and choose to organize or group the data results by location to show these stratifications.

Location - national, regional or metropolitan

Location

Select any number of locations for your query. This dataset includes United States territories, and metropolitan areas with populations more than 500,000 persons, according to the latest available official U.S. Bureau of Census estimates.

Notes:   

  • The location recorded is the patient's place of residence at the time of diagnosis, regardless of the patient's current residence.
  • Regions do not include the metropolitan statistical areas (MSAs) listed separately in the dataset.
  • Regions include adult and adolescent patients residing in a metropolitan area with less than 500,000 population, in a non-metropolitan area, or whose metropolitan area of residence is unknown, and all pediatric patients (person less than 13 years of age at the time of diagnosis). See the Regions table below.
  • Metropolitan areas do not include pediatric cases, pediatric cases are reported in regional areas for privacy reasons. Pediatric cases are where the age at diagnosis is less than 13 years of age, regardless of the patient's current age.
  • Three cities are not available in the vintage 1999 dataset, yet are available in later versions:
    Colorado Springs, Colorado,
    Daytona Beach, Florida and
    Fort Wayne, Indiana.
  • When the data results are exported to a file, the location codes are included in a separate column. See the Location Codes table below. Each Metropolitan Statistical Area (MSA) is identified by a 4-digit code.
  • The WONDER online databases's Location variable is based on the MSA variable in the APIDS dataset, columns 32-25.

Regions
Northeast:      Connecticut, Maine, Massachusetts, New Hampshire, New Jersey, New York, Pennsylvania, Rhode Island, and Vermont
Midwest:      Indiana, Illinois, Iowa, Kansas, Michigan, Minnesota, Missouri, Nebraska, North Dakota, Ohio, South Dakota, and Wisconsin
South:      Alabama, Arkansas, Delaware, District of Columbia, Florida, Georgia, Kentucky, Louisiana, Maryland, Mississippi, North Carolina, Oklahoma, South Carolina, Tennessee, Texas, Virginia, and West Virginia
West:      Alaska, Arizona, California, Colorado, Idaho, Hawaii, Montana, Nevada, New Mexico, Oregon, Utah, Washington, and Wyoming
Outside:      Participating reporting areas oustide of the United States include the U.S. dependencies, possessions, and independent nations in free association with the United States:   
Guam, Puerto Rico, the U.S. Virgin Islands, and the U.S. Pacific Islands: Puerto Rico, the U.S. Virgin Islands, Guam, American Samoa, the Republic of Palau, the Republic of the Marshall Islands, the Commonwealth of the Northern Mariana Islands, and the Federated States of Micronesia.


Location Codes and Labels
  0001   Northeast, pediatric or not in MSA 
  0002   Midwest, pediatric or not in MSA 
  0003   South, pediatric or not in MSA 
  0004   West, pediatric or not in MSA 
  0005   Territory, pediatric or not in MSA 
  0080   Akron, OH 
  0160   Albany-Schenectady, NY 
  0200   Albuquerque, N.M. 
  0240   Allentown, PA 
  0440   Ann Arbor, MI 
  0520   Atlanta, GA 
  0640   Austin, TX 
  0680   Bakersfield, CA 
  0720   Baltimore, MD 
  0760   Baton Rouge, LA 
  0875   Bergen-Passaic, NJ 
  1000   Birmingham, AL 
  1123   Boston, MA 
  1280   Buffalo, NY 
  1440   Charleston, SC 
  1520   Charlotte, NC 
  1600   Chicago, IL 
  1640   Cincinnati, OH 
  1680   Cleveland, OH 
  1720   Colorado Springs, CO 
  1760   Columbia, SC 
  1840   Columbus, OH 
  1920   Dallas, TX 
  2000   Dayton, OH 
  2020   Daytona Beach, FL 
  2080   Denver, CO 
  2160   Detroit, MI 
  2320   El Paso, TX 
  2680   Fort Lauderdale, FL 
  2760   Fort Wayne, IN 
  2800   Fort Worth, TX 
  2840   Fresno, CA 
  2960   Gary, IN 
  3000   Grand Rapids, MI 
  3120   Greensboro, NC 
  3160   Greenvile, SC 
  3240   Harrisburg, PA 
  3283   Hartford, CT 
  3320   Honolulu, HI 
  3360   Houston, TX 
  3480   Indianapolis, IN 
  3600   Jacksonville, FL 
  3640   Jersey City, NJ 
  3760   Kansas City, MO 
  3840   Knoxville, TN 
  4120   Las Vegas, NV 
  4400   Little Rock, AR 
  4480   Los Angeles, CA 
  4520   Louisville, KY 
  4880   McAllen-Edinburg-Mission, TX 
  4920   Memphis, TN 
  5000   Miami, FL 
  5015   Middlesex, NJ 
  5080   Milwaukee, WI 
  5120   Minneapolis-St Paul, MN 
  5160   Mobile, Al 
  5190   Monmouth-Ocean City, NJ 
  5360   Nashville, TN 
  5380   Nassau-Suffolk, NY 
  5483   New Haven, CT 
  5560   New Orleans, LA 
  5600   New York, NY 
  5640   Newark, NJ 
  5720   Norfolk, VA 
  5775   Oakland, CA 
  5880   Oklahoma City, OK 
  5920   Omaha, NE 
  5945   Orange County, CA 
  5960   Orlando, FL 
  6160   Philadelphia, PA 
  6200   Phoenix, AZ 
  6280   Pittsburgh, PA 
  6440   Portland, OR 
  6483   Providence, RI 
  6640   Raleigh-Durham, NC 
  6760   Richmond, VA 
  6780   Riverside-S Berndino, CA 
  6840   Rochester, NY 
  6920   Sacramento, CA 
  7040   Saint Louis, MO 
  7160   Salt Lake City, UT 
  7240   San Antonio, TX 
  7320   San Diego, CA 
  7360   San Francisco, CA 
  7400   San Jose, CA 
  7440   San Juan, PR 
  7510   Sarasota, FL 
  7560   Scranton, PA 
  7600   Seattle, WA 
  8003   Springfield, MA 
  8120   Stockton, CA 
  8160   Syracuse, NY 
  8200   Tacoma, WA 
  8280   Tampa-Saint Petersburg, FL 
  8400   Toledo, OH 
  8520   Tucson, AZ 
  8560   Tulsa, OK 
  8720   Vallejo-Fairfield-Napa, CA 
  8735   Ventura, CA 
  8840   Washington, DC 
  8960   West Palm Beach, FL 
  9040   Wichita, KS 
  9160   Wilmington, DE 
  9320   Youngstown, OH 



Step 3. Select report dates:

Limit the population to specific report dates here. Alternately, you can leave the settings at the default values (All Report Dates) and choose to organize or group the data results by Date Report to show these stratifications.

Date Reported - January 1981 - December 2002

Date Reported

Pick any combination of years, quarters and months desired.
How?  
  • Expand the highlighted years to see the annual quarters, then expand the highlighted quarters to see the months.
  • See How do I use a Finder? for hints on how to search for and select your desired time periods.
    • The default value is all years, quarters and months in the data.
    • See Finder Tool help for more hints.
Notes:   
  • The dates range from January 1981 to December 2002. Note that previous releases of the data include case reports through December of the final year. For example, the Vintage 2001 dataset includes reports through December 2001.
  • The WONDER online databases's "Date Reported" variable is the "dxdate" variable in columns 11-16 of the APIDS dataset. This value indicates the date when CDC first received information about the case.
  • When the data results are exported to a file, the date values are displayed in a separate column, as shown below.

Example Date Codes and Labels
1982   1982
1982/Q1   1st Quarter, 1982
1982/01   January, 1982



Step 4. Select diagnosis dates:

Limit the population to specific diagnosis dates here. Alternately, you can leave the settings at the default values (All Diagnosis Dates) and choose to organize or group the data results by Date Diagnosis to show these stratifications.

Date Diagnosed - January 1981 - December 2002

Date Diagnosed

Pick any combination of years, quarters and months desired.
How?  
  • Expand the highlighted years to see the annual quarters, then expand the highlighted quarters to see the months.
  • See How do I use a Finder? for hints on how to search for and select your desired time periods.
    • The default value is all years, quarters and months in the data.
    • See Finder Tool help for more hints.
Notes:   
  • The dates range from January 1981 to December 2002. Note that previous releases of the data include case reports through December of the final year. For example, the Vintage 2001 dataset includes reports through December 2001.
  • About date of diagnosis: CDC collects dates of diagnosis for each AIDS-indicator disease, and, for patients with severe immunosuppression, the date of the CD4+ T-lymphocyte test. From this information, a single date of diagnosis is calculated for each patient; it is the earliest of these dates.
  • The WONDER online databases's "Date Diagnosed" variable is the "repdate" variable in columns 5-10 of the APIDS dataset. This value indicates the month of diagnosis of first AIDS-indicator opportunistic condition.
  • When the data results are exported to a file, the date values are displayed in a separate column, as shown below.

Example Date Codes and Labels
1982   1982
1982/Q1   1st Quarter, 1982
1982/01   January, 1982




Step 5. Select demographics:
Limit your data for any of the following data elements:
  1. Age at Diagnosis - age groups (age groups from less than 1 year to 65 and older);
  2. Country of Birth - born in US, possessions or territories, or foreign born;
  3. Race or Ethnicity - American Indian / Alaskan Native, Asian / Pacific Islander, Black, Hispanic, White, Unknown;
  4. Sex and Sexual Orientation - female (any orientation), male (bisexual), male (heterosexual or pediatric), male (homosexual) or unknown classification).

Age at Diagnosis

Select any number of age groups to limit your query. Age groups range from less than 1 year old to 65 years and over.

Notes:   
  • The "35-39 years old" age group also contains those patients with the age at diagnsis not reported.
  • The WONDER online databases's "Age at Diagnosis" variable is from the APIDS "Age" variable in column 1. This value indicates the age group at diagnosis of the first AIDS-indicator opportunistic condition
  • When the data results are exported to a file, the age group code values are displayed in a separate column, as shown below.

Age at Diagnosis
Codes Labels
0 Less than 1 year old
1 1 to 12 years old
2 13 to 19 years old
3 20 to 24 years old
4 25 to 29 years old
5 30 to 34 years old
6 35 to 39 years old
  or age is missing
7 40 to 44 years old
8 45 to 49 years old
9 50 to 54 years old
A 55 to 59 years old
B 60 to 64 years old
C 65 years old or older



Country of birth

Select any combination of values.

Notes:   

  • Patients with missing or not reported values are coded as having been born in the United States.
  • The WONDER online databases's "Country of Birth" variable is from the APIDS "Birth" variable in column 21. This value indicates whether the patient was born in the United States or associated areas.
  • When the data results are exported to a file, the code values are displayed in a separate column, as shown below.

Country of Birth
Codes Labels
1 Patient was born in the United States
or its dependencies and possessions,
or place of birth was not specified.
2 Patient was born outside the United States.



Race or Ethnicity

Select any combination of values.

Notes:   

  • Patients with Hispanic ethnicity are coded as Hispanic regardless of race.
  • The WONDER online databases's "Race or Ethnicity" variable is from the APIDS "race" variable in column 3. This value indicates the race or Hispanic ethnicity of the patient.
  • When the data results are exported to a file, the code values are displayed in a separate column, as shown below.

Race or Ethnicity
Codes Labels
5 American Indian / Alaskan Native
4 Asian / Pacific Islander
2 Black (and also not Hispanic)
3 Hispanic
1 White (and also not Hispanic)
9 Unknown



Sex and Sexual Orientation

Select any combination of values.

Notes:   

  • Female patients are only classified as female.
  • Male pediatric cases (patient less than 13 years old at the time of diagnosis) are grouped with male heterosexual cases.
  • Cases with no reported classification are grouped with male homosexual cases.
  • The WONDER online databases's "Sex and Sexual Orientation" variable is from the APIDS "sexclass" variable in column 2. This value indicates the sexual classification of patient.
  • When the data results are exported to a file, the code values are displayed in a separate column, as shown below.

Sex and Sexual Orientation
Codes Labels
4 Female (any)
2 Male (bisexual)
3 Male (heterosexual or pediatric)
1 Male (homosexual) or Unknown Classification



Step 6. Select Risk Factors:
Limit your data for any of the following data elements:
  1. Multiple Modes of Exposure - pediatric (not assessed), single mode of transmission is indicated, patient has additional risks, patient's exposure is not reported or identified;
  2. HIV Exposure Category - hemophilia/coagulation disorder, heterosexual contact, IV drug use (females and heteosexual males), male homo/bisexual and IV drug use, male homo/bisexual contact, mother with HIV or HIV risk, pediatric hemophilia, pediatric receipt of blood, pediatric risk not reported or indentified, receipt of blood, blood components or tissue, risk not reported or identified;
  3. Heterosexual Partner is HIV Positive? - no, yes, missing or invalid;
  4. Heterosexual Partner is Bisexual Male? - no, yes, missing or invalid;
  5. Heterosexual Partner is an IV drug user? - no, yes, missing or invalid;
  6. Heterosexual Partner has other risks? - no, yes, missing or invalid;

Multiple Modes of Exposure

Select any combination of values.

Notes:   

  • The Multiple Modes of Exposure data element indicates if the patient has risk(s) of exposure to HIV other than the one indicated by exposure.
  • Multiple Modes of Exposure data are reported only for adult/adolescent patients (13 years old or older at the time of diagnosis).
  • The Multiple Modes of Exposure data element is from the "multrisk" variable in column 20 of the APIDS dataset, and indicates if patient had more than one risk of exposure to HIV.
  • When the data results are exported to a file, the code values are displayed in a separate column, as shown below.

Multiple Modes of Exposure
Codes Labels
   Pediatric Cases - Multiple risks of exposure not assessed 
0  Patients only mode of exposure to HIV is indicated 
1  Patient has additional risk(s) of exposure 
2  Patients mode of exposure is not reported or identified 



HIV Exposure Category

Select any combination of values.

Notes:   

  • About Exposure Category:   Some patients may have more than one mode of exposure to HIV. For surveillance purposes, AIDS cases are counted only once in a hierarchy of exposure categories. Persons with more than one reported mode of exposure are listed in the category that appears first in the exposure hierarchy, except for men with both a history of sexual contact with other men and injecting drug use. These patients make up a separate exposure category. Persons with multiple reported modes of exposure are indicated in Multiple Modes of Exposure.
  • "Men who have sex with men" cases include men who report sexual contact with other men (i.e., homosexual contact) and men who report sexual contact with both men and women (i.e., bisexual contact).
  • "Heterosexual contact" cases are persons who report specific heterosexual contact with a person with, or at increased risk for, HIV infection (e.g., an injecting drug user).
  • "Risk not reported or identified" cases are persons with no reported history of exposure to HIV through any of the routes listed in the hierarchy of exposure categories. Risk not reported or identified cases include persons who are currently under investigation by local health department officials; persons whose exposure history is incomplete because they died, declined to be interviewed, or were lost to follow-up; and persons who were interviewed or for whom other follow-up information was available and no exposure mode was identified. Persons who have an exposure mode identified at the time of follow-up are reclassified into the appropriate exposure category.
  • Adult/adolescent patients and pediatric patients have separate exposure categories.
    Adult/adolescent exposure categories:
    1 - Men who have sex with men
    2 - Injecting drug use
    3 - Men who have sex with men and inject drugs
    4 - Hemophilia/coagulation disorder
    5 - Heterosexual contact with a person with, or at increases risk for, HIV infection
    7 - Receipt of blood transfusion, blood components, or tissue
    8 - Risk not reported or identified
    Pediatric exposure categories:
     9 - Pediatric hemophilia/coagulation disorder
    10 - Mother with, or at risk for, HIV infection
    11 - Pediatric receipt of blood transfusion, blood components, or tissue
    12 - Pediatric risk not reported or identified
  • The HIV Exposure Category variable in the WONDER online database is from the Exposure variable in columns 18-19 in the APIDS dataset. This variable indicates the patient's mode of exposure to HIV.
  • About Pattern II countries:  
    • "Pattern II" is a term adopted by the World Health Organization, and refers to countries with a distinctive pattern of HIV transmission. It is observed in areas of central, eastern, and southern Africa and in some Caribbean countries. In these countries, most of the reported cases occur in heterosexuals; the male to female ratio is approximately 1 to 1; and perinatal transmission is more common than in other areas. Intravenous drug use and homosexual transmission either do not occur or occur at low levels.
    • Adults/adolescents born, or who had sex with someone born, in a country where heterosexual transmission was believed to be the predominant mode of HIV transmission (formerly classified as "Pattern-II countries" by the World Health Organization) are no longer classified as having heterosexually acquired AIDS. Similar to case reports for other persons who are reported without behavioral or transfusion risks for HIV, these reports are now classified (in the absence of other risk information which would classify them into another exposure category) as "no risk reported or identified" (see Morbidity and Mortality Weekly Report, March 11, 1994).
    • Children whose mother was born, or whose mother had sex with someone born, in a Pattern-II country are now classified (in the absence of other risk information which would classify them into another exposure category) as "Mother with/at risk for HIV infection: has HIV infection, risk not specified."
  • When the data results are exported to a file, the code values are displayed in a separate column, as shown below.

HIV Exposure Category
Codes Labels
04  Hemophilia/coagulation disorder  
05  Heterosexual contact with HIV  
02  IV drug use (female and hetero male)  
03  Male homo/bisexual and IV drug use  
01  Male homosexual/bisexual contact  
10  Mother with HIV, or HIV risk  
09  Pediatric hemophilia  
11  Pediatric receipt of blood  
12  Pediatric risk not reported or identified  
07  Receipt of blood, blood components or tissue  
08  Risk not reported or identified  



Heterosexual Partner is HIV Positive?

The possible values are No, Yes, Missing or Invalid. Select any combination of values.

Notes:   

  • This data element is recorded only for cases where the mode of transmission is heterosexual contact.
  • About hemophiliacs:   This data element is reported as Missing or Invalid (value "9") for patients with hemophilia, regardless of whether the exposure information is in fact unknown. This restriction is necessary in order to comply with the Assurance of Confidentiality. Of the 4,596 AIDS cases reported through December 1995 among adults/adolescents with hemophilia, less than 4 percent also reported heterosexual contact with a person at increased risk for AIDS or HIV infection.
  • This data element is from the "sexhiv" variable in column 25 of the APIDS dataset, which indicates sex with a person known to be infected with HIV or to have AIDS, but whose mode of exposure is unknown.
  • When the data results are exported to a file, the code values are displayed in a separate column, as shown below.

Heterosexual Partner is HIV Positive?
Codes Labels
0  No 
1  Yes 
9  Missing or Invalid 



Heterosexual Partner is Bisexual Male?

The possible values are No, Yes, Missing or Invalid. Select any combination of values.

Notes:   

  • This data element is recorded only for cases where the patient is female, and the mode of tranmission is hetersexual contact.
  • About hemophiliacs:   This data element is reported as Missing or Invalid (value "9") for patients with hemophilia, regardless of whether the exposure information is in fact unknown. This restriction is necessary in order to comply with the Assurance of Confidentiality. Of the 4,596 AIDS cases reported through December 1995 among adults/adolescents with hemophilia, less than 4 percent also reported heterosexual contact with a person at increased risk for AIDS or HIV infection.
  • This data element is from the "sexbi" variable in column 22 of the APIDS dataset, which indicates Sex with a bisexual man (women only).
  • When the data results are exported to a file, the code values are displayed in a separate column, as shown below.

Heterosexual Partner is Bisexual Male?
Codes Labels
0  No 
1  Yes 
9  Missing or Invalid 



Heterosexual Partner is an IV Drug User?

The possible values are No, Yes, Missing or Invalid. Select any combination of values.

Notes:   

  • This data element is recorded only for cases where the mode of transmission is heterosexual contact.
  • About hemophiliacs:   This data element is reported as Missing or Invalid (value "9") for patients with hemophilia, regardless of whether the exposure information is in fact unknown. This restriction is necessary in order to comply with the Assurance of Confidentiality. Of the 4,596 AIDS cases reported through December 1995 among adults/adolescents with hemophilia, less than 4 percent also reported heterosexual contact with a person at increased risk for AIDS or HIV infection.
  • This data element is from the "sexiv" variable in column 23 of the APIDS dataset, which indicates sex with a person who is an injecting (intravenous) drug user.
  • When the data results are exported to a file, the code values are displayed in a separate column, as shown below.

Heterosexual Partner is IV Drug User?
Codes Labels
0  No 
1  Yes 
9  Missing or Invalid 


Heterosexual Partner has Other Risks?

The possible values are No, Yes, Missing or Invalid. Select any combination of values.

Notes:   

  • This data element is recorded only for cases where the mode of transmission is heterosexual contact.
  • This data element is coded as Yes (value "1") when the hetersoexual partner has hemophilia, or is a blood transfusion recipient.
  • About hemophiliacs:   This data element is reported as Missing or Invalid (value "9") for patients with hemophilia, regardless of whether the exposure information is in fact unknown. This restriction is necessary in order to comply with the Assurance of Confidentiality. Of the 4,596 AIDS cases reported through December 1995 among adults/adolescents with hemophilia, less than 4 percent also reported heterosexual contact with a person at increased risk for AIDS or HIV infection.
  • This data element is from the "sexother" variable in column 24 of the APIDS dataset, which indicates sex with a person with hemophilia, or sex with a transfusion recipient.
  • When the data results are exported to a file, the code values are displayed in a separate column, as shown below.

Heterosexual Partner has Other Risks?
Codes Labels
0  No 
1  Yes 
9  Missing or Invalid 




Step 7. Select Disease Criteria:
Limit your data for any of the following data elements:
  1. Case definition - pre-1985 surveillance definition, 1985 surveillance definition, 1987 definition and diagnosed definitively, 1987 definition and diagnosed presumptively, 1993 definition and diagnosed definitively, 1993 definition and diagnosed presumptively, 1993 definition and diagnosed immunologically;
  2. Vital Status - alive (not reported dead before 2001), dead (reported dead prior to 2001).

Case Definition

Select any combination of values.

Notes:   

  • Note that all cases included in this dataset meet the current (1993) surveillance case definition. This data element indicates the other case definitions that are also applicable to the patient.
  • About the 1993 surveillance definition for AIDS:
    1. the definitive diagnosis refers to pulmonary tuberculosis, recurrent pneumonia, and/or cervical cancer;
    2. the presumptive diagnosis refers to pulmonary tuberculosis and/or recurrent pneumonia;
    3. the immunologic diagnosis refers to severe HIV-related immunosuppression.
  • The Case Definition data item reflects changes made over time to the CDC surveillance definition for AIDS. Only cases meeting the current (1993) surveillance definition are included in this data set. The Case Definition data item indicates whether the patient also met the pre-1985, 1985, or 1987 surveillance definition, and whether the diagnosis, if it meets the 1987 or 1993 definition, was definitive or presumptive. Cases that meet more than one of these surveillance definitions are classified into the category listed first. For more information about the 1993 definition, see Morbidity and Mortality Weekly Report, December 18, 1992, Recommendations and Reports.
  • About the AIDS case definition category:  
    • Patients may develop additional conditions indicative of AIDS after their initial AIDS diagnosis. The case report form may not be updated to reflect additional conditions. Some persons reported as meeting only the immunologic criteria may have concurrent or prior opportunistic infections or conditions that are not included in the case report. Therefore, cases reported as meeting only the criteria added to the case definition in 1993 may include persons who meet the criteria in 1987 definition.
    • There is rare form of HIV called Type O that is found in western Africa. The available tests for HIV do not always detect the Type O strain. This means that blood programs must take special precautions to keep this virus out of the blood supply by not taking blood donations from those who have been where the virus is found. Persons who were born in or lived in Cameroon, Central African Republic, Chad, Congo, Equatorial Guinea, Gabon, Niger and Nigeria since 1977 cannot be blood donors.
    • The Case Definition data values are defined as follows:
      1 - Case meets the pre-1985 surveillance definition.
      2 - Case meets the 1985 surveillance definition.
      3 - Case meets the 1987 surveillance definition
           and was diagnosed definitively.
      4 - Case meets the 1987 surveillance definition
           and was diagnosed presumptively.
      5 - Case meets the 1993 surveillance definition:
           pulmonary tuberculosis, recurrent pneumonia,
           and/or cervical cancer (definitive diagnosis).
      6 - Case meets the 1993 surveillance definition:
           pulmonary tuberculosis and/or
           recurrent pneumonia (presumptive diagnosis).
      7 - Case meets the 1993 surveillance definition:
           severe HIV-related immunosuppression.
  • Historical background of case definition revisions:  
    Before HIV was identified as the etiologic agent for AIDS, CDC defined a case of AIDS (for surveillance purposes) as a disease, at least moderately indicative of a defect in cell-mediated immunity, occurring in a person with no known cause for diminished resistance to the disease. Such diseases included Pneumocystis carinii pneumonia, Kaposi's sarcoma, and many other serious opportunistic infections (see American Journal of Medicine, March 1984, pages 493-500). With identification of HIV as the causative agent for AIDS and the availability of laboratory tests to detect HIV antibody, the case definition was expanded to reflect an increased understanding of HIV infection in 1985 (see CDC's Morbidity and Mortality Weekly Report, June 28, 1985, pages 373-375) and in 1987 (see Morbidity and Mortality Weekly Report, August 14, 1987, supplement, pages 3S-15S). These revisions applied to persons with laboratory evidence for HIV infection. Among diseases added in 1985 were disseminated histoplasmosis, chronic isosporiasis, and certain non-Hodgkin's lymphomas. Among those added in 1987 were extrapulmonary tuberculosis, HIV encephalopathy, and HIV wasting syndrome. In children, recurrent, serious bacterial infections were also added. In addition, the 1987 revision allowed certain indicator diseases to be diagnosed presumptively based on clinical presentation rather than "confirmed" by laboratory or diagnostic methods.

    To be consistent with standards of medical care for HIV-infected persons and to more accurately reflect the number of persons with severe HIV-related immunosuppression who are at highest risk for HIV-related morbidity and most in need of close medical follow-up, the surveillance definition was expanded on January 1, 1993 (see CDC's Morbidity and Mortality Weekly Report, Recommendations and Reports, December 18, 1992). This expansion includes all HIV-infected adults and adolescents who have less that 200 CD4+ T-lymphocytes/µL or a CD4+ T-lymphocyte percent of total lymphocytes less than 14, or who have been diagnosed with pulmonary tuberculosis, invasive cervical cancer, or recurrent pneumonia. The addition of pulmonary tuberculosis, recurrent pneumonia, and invasive cervical cancer in HIV-infected adults and adolescents to the 23 clinical conditions listed in the 1987 surveillance definition reflects their documented or potential importance in the HIV epidemic.

    While the reported incidence of AIDS increased only 3 to 4 percent as a result of the 1985 revision, the 1987 revision greatly increased the numbers of reported cases. Roughly one fourth of all adults/adolescents who were both diagnosed and reported in the year following the 1987 revision were reported based only on the additional criteria included in the 1987 revision. Furthermore, the proportion of cases meeting only the revised criteria was higher in Hispanics and non-Hispanic blacks than in non-Hispanic whites, higher in heterosexual injecting drug users, and lower in men who have sex with men. The 1993 revision has had substantial impact on the number of reported cases. The immediate increase in case reporting was largely attributed to the addition of severe immunosuppression to the definition; a smaller impact was due to the addition of pulmonary tuberculosis, recurrent pneumonia, and invasive cervical cancer, since many persons with these diseases also have a CD4+ T-lymphocyte count of less than 200 cells/µL. The early effects of expanded surveillance were greater than long-term effects because prevalent as well as incident cases of immunosuppression were reported after implementation of the expanded surveillance case definition. In recent years, the effect on the number of reported cases has been smaller. Due to the large number of cases reported based on criteria in only the revised case definitions and to the inconsistent use of the revised case definitions in different populations, analyses of trends in AIDS cases must take these revisions into account.

  • This data element is from the "categ" variable in column 4 of the APIDS dataset, which indicates which of the CDC AIDS case revisions the patient meets.
  • When the data results are exported to a file, the code values are displayed in a separate column, as shown below.

Case Definition categories
Codes Labels
1   Pre-1985 surveillance definition
2   1985 surveillance definition
3   1987 definition and diagnosed definitively
4   1987 definition and diagnosed presumptively
5   1993 definition and diagnosed definitively
6   1993 definition and diagnosed presumptively
7   1993 definition and diagnosed immunologically



Vital Status

Select any combination of values.

Notes:   

  • Vital Status indicates if the patient has died 2 years prior to the annual publication of the dataset. For example, the Vintage 1999 dataset reports whether patients have died before 1997.
  • About the classification of Vital Status:
    • Patients diagnosed during the 2 most recent years are reported alive regardless of the patient's vital status.
    • AIDS prevalence rates calculated for the most recent two-year period should be interpreted with caution. The rates calculated will be artificially high because all persons diagnosed in this period are coded with the vital status of alive, even if a death has been reported to CDC for that person. This is to prevent inadvertent indirect identification of any record by linking a death date inferred from this data set to other publicly available data sets which contain death dates on individuals.
    • For more information on trends in AIDS, see Morbidity and Mortality Weekly Report, September 19, 1997 and April 24, 1998.
    • Patients survive for a variable amount of time following the diagnosis of AIDS. Because death usually occurs after the initial report to CDC, case reports may not be updated to reflect the change in vital status. As a result, reporting of deaths among AIDS patients may be delayed or incomplete. However, states are required to perform periodic reviews of death certificates and state death registries to identify unreported cases, and to update vital status of known cases. In addition, 16 states participated in a special project to match their case registries to the National Death Index to assess the completeness of reporting and to identify deaths among cases that died out-of-jurisdiction.
  • This data element is from the "death" variable in column 17 of the APIDS dataset, which indicates the vital status of the patient, 2 years prior to data release.
  • When the data results are exported to a file, the code values are displayed in a separate column, as shown below.

Vital Status
Codes Labels
0    Alive: Not reported dead before (year)
1    Dead: Reported dead before (year)  efore 2001



Step 8. Other options:
Export Results:    If checked, then query results are exported to a local file. More information on how to import this file into other applications can be found here.
How?   See CheckBox.
Show Totals:    If checked, then totals and sub-totals display in the results table.
How?   See CheckBox.
Show Zero Values:    If checked, then rows containing zero counts display in the results table. If unchecked, then zero count rows are suppressed.
How?   See CheckBox.
Precision:    Precision is not available for this dataset because case counts are whole numbers.
Data Access Timeout:    This value specifies the maximum time to wait for the data access for a query to complete. If the data access takes too long to complete, a message will be displayed and you can increase the timeout or simplify your request. If you can't complete a request using the maximum timeout, contact user support and we will try to run a custom data request for you.

Data Source Information

To learn more about the methods and source of these data please refer to:


Additional Information

Suggested Citation:    US Department of Health and Human Services (US DHHS), Centers for Disease Control and Prevention (CDC), National Center for HIV, STD and TB Prevention (NCHSTP), AIDS Public Information Data Set (APIDS) US Surveillance Data for 1981-2002, CDC WONDER On-line Database, December 2005.
Contact:    The CDC Division of HIV/AIDS Prevention welcomes questions at http://www.cdc.gov/hiv/contact.htm.
Notes:   
  • Assurance of Confidentiality:  

    This data contains information abstracted from acquired immunodeficiency syndrome (AIDS) case reports received from state and local health departments, who voluntarily report cases of AIDS to CDC. Case reports do not include patient or physician names or other personal identifiers. The data are protected under an Assurance of Confidentiality (Sections 306 and 308(d) of the Public Health Service Act, 42 U.S.C. 242k and 242m(d)), which prohibits disclosure of any information that could be used to directly or indirectly identify patients. The statistical data contained in the AIDS Public Information Data Set are being released for public use in accordance with this assurance and do not identify patients directly, nor do they contain information that can identify patients indirectly.

  • About the locations:  

    Confidentiality requirements limit geographic detail. The regions do not contain the metropolitan areas.

    'Location' indicates the residence of the patient at the time of diagnosis.

    Metropolitan area of residence at the time of diagnosis of AIDS is identified for adult/adolescent patients residing in MSAs with 500,000 or more population. For adult/adolescent patients residing in an MSA with less than 500,000 population, in a non-metropolitan area, or whose metropolitan area of residence is unknown, and for all pediatric patients, Region of residence is identified.

    Three cities are not available in the vintage 1999 dataset, yet are available in later versions: Colorado Springs, Colorado, Daytona Beach, Florida and Fort Wayne, Indiana.

  • About exposure risks for heterosexual contacts, age 13 and over:  

    The 4 variables for the patient's sexual partner's risk category (BiSexual, IV Drug User, HIV Positive and Other) contain additional exposure information for patients infected heterosexually.

    The 'Heterosexual Partner is Bisexual Male' variable is coded only for women.

  • About patients with hemophilia:  

    All 4 variables for the patient's sexual partner's risk category contain 'Missing/Unknown' for patients with hemophilia, regardless of whether the exposure information is in fact unknown. This restriction is necessary in order to comply with the Assurance of Confidentiality. Of the 4,596 AIDS cases reported through December 1995 among adults/adolescents with hemophilia, less than 4 percent also reported heterosexual contact with a person at increased risk for AIDS or HIV infection.

  • About the classification of 'Vital Status:'  

    Patients diagnosed during the 2 most recent years are coded as Alive regardless of the patient's vital status. AIDS prevalence rates calculated for the most recent two-year period should be interpreted with caution. The rates calculated will be artificially high because all persons diagnosed in this period are coded with the vital status of Alive, even if a death has been reported to CDC for that person. This is to prevent inadvertent indirect identification of any record by linking a death date inferred from this data set to other publicly available data sets which contain death dates on individuals.

  • About unidentified risk:  

    Adults/adolescents born, or who had sex with someone born, in a country where heterosexual transmission was believed to be the predominant mode of HIV transmission (formerly classified as Pattern-II countries by the World Health Organization) are no longer classified as having heterosexually acquired AIDS. Similar to case reports for other persons who are reported without behavioral or transfusion risks for HIV, these reports are now classified (in the absence of other risk information which would classify them into another exposure category) as 'no risk reported or identified' (see CDC's Morbidity and Mortality Weekly Report, March 11, 1994). Children whose mother was born, or whose mother had sex with someone born, in a Pattern-II country are now classified (in the absence of other risk information which would classify them into another exposure category) as 'Mother with/at risk for HIV infection: has HIV infection, risk not specified.'

  • About exposure and pediatric patients (age under 13 years at diagnosis):  

    Pediatric cases are classified in just 4 exposure categories:
    1) Hemophilia/coagulation disorder
    2) Mother with, or at risk for, HIV infection
    3) Receipt of blood transfusion, blood components, or tissue
    4) Risk not reported or identified.

  • About the 'Case Definition' category:  

    Only cases meeting the current (1993) surveillance definition are included in this dataset. The Case Definition Category indicates whether the patient also met the pre-1985, 1985, or 1987 surveillance definition, and whether the diagnosis, if it meets the 1987 or 1993 definition, was definitive or presumptive. Cases that meet more than one of these surveillance definitions are classified into the category listed first. For more information about the 1993 definition, see Morbidity and Mortality Weekly Report, December 18, 1992, Recommendations and Reports and Morbidity and Mortality Weekly Report, November 18, 1994, Current Trends Update: Trends in AIDS Diagnosis and Reporting Under the Expanded Surveillance Definition for Adolescents and Adults - United States, 1993. For more information about the pediatric case definition, see Morbidity and Mortality Weekly Report, September 30, 1994, Recommendations and Reports.

  • About the 1993 surveillance definition for AIDS:  

    1) the definitive diagnosis refers to pulmonary tuberculosis, recurrent pneumonia, and/or cervical cancer;
    2) the presumptive diagnosis refers to pulmonary tuberculosis and/or recurrent pneumonia;
    3) the immunologic diagnosis refers to severe HIV-related immunosuppression.

  • About 'Multiple Modes of Exposure:'  

    'Multiple Modes of Exposure' data are reported only for adult/adolescent patients (13 years old or older) and indicates if the patient has risk(s) of exposure to HIV other than the one indicated by exposure.

  • About age groups:  

    Age groups classify the patient's age at time of diagnosis. The age groups are structured in irregular ranges, in order to affect numerator size and protect confidentiality. For example, cases where age is 'Missing' are included in the age 35-39 year old range.

  • About 'Sex and Sexual Orientation:'  

    Only Adult/adolescent males are classified according to their sexual orientation. The variable for sexual classification has just 4 categories:
    1) Adult/adolescent male who has sex only with other men,

    or sex is Missing,
    or sexual orientation is Missing
    2) Adult/adolescent male who has sex with Both men and women
    3) Adult/adolescent heterosexual male or Pediatric male
    4) Female (both adult/adolescent and pediatric).

  • About 'Race or Ethnicity:'  

    The 'Race or Ethnicity' classification shows only Hispanic ethnicity or a single race, and does not indicate multi-racial or multi-ethnic heritage.




This page last reviewed: Tuesday, January 05, 2016
This information is provided as technical reference material. Please contact us at cwus@cdc.gov to request a simple text version of this document.
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